27 November 2005
Saw the "very swift and stressful" arrival of
Emily Jean - weighing 3lb 8oz
So, today please join us in wishing our brave, beautiful and simply amazing little princess
A VERY HAPPY 5th BIRTHDAY
WE LOVE YOU VERY MUCH SWEETHEART
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0veyZ3OIOyXFiwUV8kk4Y_CV6kxDBipe3b8DzA3RAMO8VvIPH1f4UtkxJ4IY2LUXL-PsZac4CdYxLa5kTWk_sW_t-DtA7tCScBAbxncbRl7eJh6F1N9HyDkwKiqod5nH_k0hqZF6Dk8I/s1600/Blogger+Header+2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Have a wonderful, happy, birthday Emily!!!!
ReplyDeleteGreat pictures!