Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Today the children got to dress up for Red Nose Day in aid of Comic Relief
Emily found it hard this morning - she didn't understand that it was a school day as she didn't have her school uniform on. Serious strop = late for school!