What is ??
I can smell it ~ I really can.....
It must be ~ we got to go to the park...
SPRING is just around the corner
[fantastic]
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0veyZ3OIOyXFiwUV8kk4Y_CV6kxDBipe3b8DzA3RAMO8VvIPH1f4UtkxJ4IY2LUXL-PsZac4CdYxLa5kTWk_sW_t-DtA7tCScBAbxncbRl7eJh6F1N9HyDkwKiqod5nH_k0hqZF6Dk8I/s1600/Blogger+Header+2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Emily is beautiful !
ReplyDeleteCongratulations !
Kisses, Sarah , Brazil
Such a cutie!
ReplyDeleteMy daughter got the rare chromosome disorder 13q21.31q31.2 about a year ago.
We still struggle but things are getting more "normal", were starting to understand more about the disorder and her needs.