Both my little beauties are back at school
Wishing you both a wonderful School Year full of Fun, Laughter and Learning
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0veyZ3OIOyXFiwUV8kk4Y_CV6kxDBipe3b8DzA3RAMO8VvIPH1f4UtkxJ4IY2LUXL-PsZac4CdYxLa5kTWk_sW_t-DtA7tCScBAbxncbRl7eJh6F1N9HyDkwKiqod5nH_k0hqZF6Dk8I/s1600/Blogger+Header+2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
great photo, emily looks so grown up. How is she getting along these days?!
ReplyDeleteshe is so adorable! love love love
ReplyDeleteI couldnt find another way to contact you, sorry, We have a son austin age 6 with 17q21.23 please contact us at tedneedham62@gmail.com thank you
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