Quality time away with your family ya can't beat it....... who cares what's happening back home!!
See ya soon
xx
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0veyZ3OIOyXFiwUV8kk4Y_CV6kxDBipe3b8DzA3RAMO8VvIPH1f4UtkxJ4IY2LUXL-PsZac4CdYxLa5kTWk_sW_t-DtA7tCScBAbxncbRl7eJh6F1N9HyDkwKiqod5nH_k0hqZF6Dk8I/s1600/Blogger+Header+2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Love the picture of Emily & her brother hand in hand on the beach. Life doesn't get much sweeter than that, now does it?
ReplyDeleteahhh so sweet
ReplyDelete