Quality time away with your family ya can't beat it....... who cares what's happening back home!!
See ya soon
xx
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0veyZ3OIOyXFiwUV8kk4Y_CV6kxDBipe3b8DzA3RAMO8VvIPH1f4UtkxJ4IY2LUXL-PsZac4CdYxLa5kTWk_sW_t-DtA7tCScBAbxncbRl7eJh6F1N9HyDkwKiqod5nH_k0hqZF6Dk8I/s1600/Blogger+Header+2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Showing posts with label Holiday. Show all posts
Showing posts with label Holiday. Show all posts
Tuesday, 31 August 2010
Friday, 27 August 2010
You'll Never Guess!
Don't suppose you need 3 guesses to get where we've been this summer ?!?
Of course - Disney
Lots more photos WILL follow of course!
This year it was Euro-Disney, Paris - fingers crossed 2012 will be the real thing [ssshhh Mums 40th celebration so don't tell her!!!]
Hoping to get to meet up with some of my siblings new friends when over in Florida too.
[if you live Florida way and have an interest in my blog / syndrome would be great to meet you - send me an email sometime]
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