Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Saturday, 27 November 2010
27 November 2005
Saw the "very swift and stressful" arrival of
Emily Jean - weighing 3lb 8oz
So, today please join us in wishing our brave, beautiful and simply amazing little princess