Wednesday, 29 September 2010

Your Child's Love

It's easy to complain about the things you don't have, and overlook or take for granted the things you do - simple things that enrich your life!

Maybe this story by Dr James Dobson will help change your perspective. 'Some time ago a friend of mine punished his three-year-old daughter for wasting a roll of gold wrapping paper. Money was tight and he became upset when she tried to decorate a box to put under the Christmas tree. Nevertheless, the little girl brought the gift to her father the next morning and said, "This is for you, Daddy." He was embarrassed by his earlier over-reaction. But his anger flared again when he opened the box and found it empty. He shouted at her, "Don't you know that when you give someone a present there's supposed to be something inside?" The little girl looked up at him in tears and said, "Oh, Daddy, it's not empty. I blew kisses into it. I filled it with my love and I wrapped it up just for you." He was crushed. Quickly he put his arms around her, hugged her and asked for her forgiveness. My friend told me that he kept that gold box by his bed for years, and whenever he got discouraged he'd take out an imaginary kiss and remember the love of the child who had put it in there. In a very real sense, each of us parents has been given a gold container filled with the unconditional love of our children. There's not a more precious possession anyone could hold.'

Monday, 20 September 2010

somewhere over the rainbow

find happy3

At the end of my rainbow is a different place.  A place where all the parents of special needs come together to hold hands.   

The hardest thing I have found as the parent of a child with special needs - is the feeling of being alone - of thinking people don’t understand.  But having the support of other special needs priceless.   With them, we know we aren't alone. 

We will take this journey one step at a time - not focusing on what is down the road a ways off, but knowing in our hearts that whatever does wait for us will continue to wait. And it will be okay - no matter what.


At the end of my rainbow is a different place.  A place where all the parents of special needs children come together to hold hands and see the world from a different & amazing perspective.

With love,
Christina @ Pooh's Corner

Saturday, 18 September 2010

Oh so.....


It's tiring work going to BIG GIRL school!!

By the time we made the journey home yesterday she was fast asleep...

Our second week as been a great success too..

Next week she starts full days at her mainstream setting - wonder how tired she'll be by next Friday!

Wednesday, 15 September 2010

Being a Guest

I received an email last week from a special Mummy of a little girl with the same rare syndrome as Emily, inviting me to be a "Guest on her Blog", although excited by this invite ~ I'll be honest I had no idea what this actually meant - so Christina explained that she would like me to do a blog update but on HER blog!

Very exciting.......... but the responsibility worried me!!  I'm no computer expert, certainly no website designer and certainly do NOT class myself as being in the same league as my blogging friend.  I was terrified I made a mess of her wonderful blog, as believe me, her website and blog page are professional and beautiful.

Hmmmm - you know me and responsibility - a challenge is exactly what I like - so I jumped at the chance!

I wanted to share it with you:

Wow - the world of blogging is a wonderful thing - you ought to try it one day!

Monday, 13 September 2010

So How's School?

Continuation from my last post - that day did come - you know THAT day that I was dreading!!

The day that Emily started "BIG" school.....

So here she is on her first morning with Joshua (her big Brother)

Does she look like a little girl who doesn't want to go to school?
Does she look nervous at all?
Do you think Mummy was looking this happy?

I was a wreck, I mean we have fought so hard for Emilys educational settings and with a wonderful team of professionals - we got what we requested BUT that responsibility is huge when it may not work out or your child may not even like it.

So - this was her first day... this is her support worker who will be helping Emily in this mainstream setting

On a Monday and Tuesday Emily will be here..... Mainstream with support - wearing her GREEN uniform [this is the same school as her Brother]

For the rest of the school week she attends a local Special School - wearing a BLUE uniform
{her support worker above actually works at the Special School in Emilys class}

Our overall aim is to continue with this Dual Placement until Emily can tell us herself where she prefers - who are we to make that choice for her?!?

As parents of a child with additional needs / disabilities it's a huge responsibility to know what is right, so many things to consider - from happiness to achievement, friendships to specialist services etc etc - it is NOT easy.

Just as I'm leaving her on her first morning - I say bye..... she looks at her support worker for reassurance but she's still smiling ~ no tears from my little girl.

When we picked her back up again - they looked as if they had been busy and had lots of fun!

No rushing her out of the playground either - she wanted to sit in the summer house watching the cat!!




Monday, 6 September 2010

The Next Chapter....

I really cannot believe the summer holidays have passed this fast!

In our house this evening all is quiet

Everything is still


Tonight is the night before one of the biggest days of our Precious Princess's life

Twas The Night Before.....


The uniforms are labelled, ironed and hanging nicely

Emily is getting some sleep {for now anyway!} ready for her BiG day

Emily seems VERY excited, we have "talked/signed" about it alot these last few days

Hows Mum feeling I hear you ask "I'll answer that one tomorrow...."

let's hope and pray we made the right choices for you