Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
As you know it was Emilys 4th Birthday recently so I just wanted to share with you some of the photographs from her party.
VENUE: KINDERLAND DATE: 29/11/09 TIME: 10am til 12 noon
28 CHILDREN MIXTURE OF GIRLS & BOYS MIXTURE OF "REGULAR" KIDS and SPECIAL NEEDS KIDS
DID THEY ALL HAVE FUN TOGETHER ~ YES THEY DID
All of the children had a fantastic time, I would like to say thank you so much for coming, thank you for all of the lovely presents and more importantly thank you for making Emilys birthday so special. With love Tracey & Ian xx
I find it hard to believe that 4 years have passed by so very very quickly...... This is the only photograph I can find of me when pregnant with Emily!! I didn't get the chance to grow any bigger as my pregnancy was cut so short and Emily had to make an emergency entrance in to this world..... It has passed so quickly but the journey has been long, full of fear, heartache and grief ~vs~ un-conditional love, determination, achievements, proudness, smiles, happiness and more importantly made us appreciate what we have "A Beautiful Little Girl" and what is truely important in life.....
So today my blog is plain and simple....... it's to wish our gorgeous and very brave little pumpkin a
WE LOVE YOU VERY VERY MUCH and FEEL HONOURED THAT YOU CHOSE US TO BE YOUR PARENTS - YOU HAVE TAUGHT US SO MUCH xxxxxx
Did you know that this is my favourite festive film....
I love it........ the story of Ebenezer Scrooge and Bob Cratchit and his poor family!
This is a light hearted post really....... but this morning I'm realising that poor Bob and his family are showing a resemblance to my own family situation!!!
My hubby has been a rather "mature" apprentice for the last 3 years...... money has been extremely tight to say the least but this was our choice and a way of making a better future for us as a family....
We thought the hardship would stop now that he has qualified....... he's now a fully qualified Joiner (yippee) - qualified nearly 5 months ago now.
Alas ~ no happy ending to this story........ these "economic" times are not great for most businesses ....... so no pay reward from been an "apprentice" to now been "qualified" and also been stuck in a no-win situation as there aren't any jobs out there to apply for either.
Is he been taken adventure of ?? - YES I personally feel he is
Could more be done to at least acknowledge the fact that he is now qualified ?? - YES I personally feel there could be
So here I am "Mrs Cratchit" complaining to her hard working husband "Bob" that that old "Ebenezer Scrooge" doesn't deserve his loyalty........ while all along wondering what the future holds for our own "Tiny Tim / Emily"
I am hoping the ghosts of Christmas' past / present & future make their visits to our Ebenezer this year..............
ANYONE KNOW OF ANYONE NEEDING A JOINER - please email us here...........
JUST LOOK WHO EMILY GOT TO HAVE A CUDDLE WITH.....
I am very happy to say that Mum is home ....
So now it's trying to all get our lives back on track and find some sort of normality again - but that's proving to be quite difficult.....
I can't forget that last week MY BEAUTIFUL MUM had a heart attack, I can't seem to get it out of my mind that just 10 days ago we were very very close to losing her. In fact I'm probably finding this week much harder than last week....... I suppose last week I tried to hold everything together for Dad, tried to be strong and positive............ this week I'm an emotional wreck!!
Obviously though I'm VERY VERY HAPPY to have her home, to be able to see her smile, to be able to have a chat with her and more importantly to be able to give her a very tight hug and tell her HOW MUCH WE ALL LOVE HER.. xxxxx
Now if you where to ask Emily who she loved the most in the whole world - she would sign to you "Grandma" :-)
One of Emily's obsessions is "Grandma" :-)
Emily and her Grandma have a very special relationship (as does her big Brother)
MY BEAUTIFUL MUM....... she is my best friend
MY BEAUTIFUL MUM...... she is my rock
MY BEAUTIFUL MUM...... is the core of our family unit
MY BEAUTIFUL MUM...... is my every thing
This week has been a week from HELL - I can think of no other way to describe it. I arrived at my parents home on Tuesday morning to find paramedics attending to MY BEAUTIFUL MUM - I say with great sadness and a very heavy heart that my Mum had suffered a heart attack...............
Thankfully Mum is doing very well ~ I have just returned from the hospital....... she had a 100% blockage to one of her valves which was a blood clot, the operation was successful and thankfully carried out immediately. As long as Mum takes things easy she may even be allowed home soon!!
I find it difficult to comprehend how life can change so drastically with no warning what so ever!!
So please don't take your loved ones for granted - life is more delicate than I realised even with what we have experienced with Emily and her problems nothing in the world could have prepared me for this.
Lots of prayers and healing vibes for MY BEAUTIFUL MUM please.