Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Saturday, 18 September 2010
It's tiring work going to BIG GIRL school!!
By the time we made the journey home yesterday she was fast asleep...
Our second week as been a great success too..
Next week she starts full days at her mainstream setting - wonder how tired she'll be by next Friday!