At week 3 and 4 we aren't having to use our imagination quite so much ~ it is starting to take shape...
and the bricks have arrived - yippeeeee.
![EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]](http://4.bp.blogspot.com/-fte5oieB5CM/UxL49XoufZI/AAAAAAAAAy8/4uKUtGCrpCc/s1600/Blogger%2BHeader%2B2smaller.jpg)
Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
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