Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Monday, 18 January 2010
All Grown Up
At Emilys new school the children have the option to wear a uniform
and most of the children do!!!
So I just thought I would share this moment with you