Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Monday, 25 January 2010
During our journey on this pathway that has been chosen for us we have come across ALOT of special people..
Most people do care, some don't mind you, but thankfully most people do.
ONE person that most definately does
Is Emilys support worker at her mainstream pre-school
Siobhan is full of SPECIAL~NESS
We feel lucky and blessed to have her
Her passion for what she does is obvious, nothing is ever too much trouble and she's always looking for new ways to help Emily (and all of the other children she supports within other settings as she works for the PLA)
Just the other day she turned up with a gift for Emily ~ some lovely wall decorations for her bedroom
THANK YOU SIOBHAN - THEY ARE LOVELY
THANK YOU FOR ALL THAT YOU DO ~ OUR APPRECIATION CANNOT BE MEASURED BY WORDS