Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Tuesday, 2 February 2010
Just for Fun ?
Now I agree ~ Emily looks happy and as if this is "Just for Fun"
BUT, actually this is all part of her therapy.... which we do at home daily with her.
Since Christmas every Sunday we take Emily to a private therapy centre, to work on her sensory integration and she loves it..........
Is it worth the money, time and effort ??
In the month that Emily has been attending these sessions she is doing less self stimulating behaviour and has actually come out with a few more words.....
Get this ~ only yesterday at her mainstream pre-school she actually showed interest in letter sounds and clearly did "B" and "C K".
Doesn't sound like a great achievement to some BUT to us THIS IS MASSIVE ~ well done our little princess x