Monday, 23 August 2010

Eyes / MRI Update

We now have the MRI results and have seen Emily's Consultant Ophthalmologist.

Now Emilys brain has grown (her last MRI when she was 15 months old), it is definately more obvious that she does have some abnormalities.  The changes are consistent with Periventricular Leukomalacia, so this isn't new information for us - we already knew this was a possibility from her first scan, but now it is more obvious - so I treat this as just confirmation.

It does appear that Emily has had a bleed on the brain at some stage, which we didn't know.  This could have been due to her prematurity or could be something that has happened during a seizure - we don't know.  What the Consultant does know is that this is probably the reason Emily has the visual perception difficulties and squint.  The optic nerve runs close to the area affected by the PVL and the bleed.

They will continue to monitor Emilys vision for now and possibly repeat an MRI when shes older to rule out degenerative disease.  Her Ophthalmologist Consultant is wanting to do a Kestenbaum procedure (surgical procedure on the extraocular muscle indicated for patients with torticollis associated with nystagmus) to adjust Emilys abnormal head posture when she is older and at that stage will incorporate correction of her squint.

I don't want to make this too much of a serious post - life isn't always about serious!!! 

Happiness is the most important thing - does she look happy to you?

With love to all my readers xx


  1. she's beautiful, as you know x

  2. Emily has the same exact [periventricular leukomalicia}. What on earth that means I have no idea. LOL. Let's find out.

    PS. Her MRI findings are on her website in case you wanted to check it out. {if you haven't already}

  3. Love & Hugs from Pooh's Corner! We love you and love being part of Team C17.

  4. She looks very happy! Its tough to have those findings, yet good to know what she has and what can be done to help her if time doesn't correct on its own. thanks for the update, best to you both, D