Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Tuesday, 31 August 2010
See ya soon......
Quality time away with your family ya can't beat it....... who cares what's happening back home!!