Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome].
Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up.
Friday, 9 July 2010
Cool for School
The weather has been heating up here in the UK for the last couple of weeks [hope I'm not speaking too soon!].
Emily has been having to wear shorts etc as her school uniform has just been too warm for her.
I got her some little summer school dresses yesterday so just had to share this one with you!